Committees

 

Phototherapy Committee

 

Purpose:

  1. Use the best scientific evidence available to develop international standards of care in the treatment of vitiligo with phototherapy

  2. Identify gaps in care and areas requiring further research

  3. Improve the quality of life of patients by creating integrated phototherapy protocols that are broadly applicable.

 

Chair:
Samia Esmat, M.D.
Professor of Dermatology
Cairo University

Phototherapy Consensus Panel Members:
Iltefat H. Hamzavi, M.D.
Amit G. Pandya, M.D.
Giovanni Leone, M.D.  
Raúl Cabrera, M.D.
Mohammed Aljamal, M.D.

 

The Vitiligo Registry Committee


Purpose:
The purpose of the Registry Committee of the Vitiligo Working Group is to:

  1. Develop standards in the development and management of a registry for patients with vitiligo using a consensus process

  2. Disseminate these standards worldwide and encourage their use


Chair:
Amit G. Pandya, M.D.
Professor
Department of Dermatology
University of Texas Southwestern Medical Center
Dallas, Texas, USA

 

Outcomes Committee

 

Purpose:

  1. To develop outcome measures for vitiligo

  2. To coordinate understanding and use of outcome measures developed by different groups


Chair:
Khaled Ezzedine, M.D.
Department of Dermatology and Pediatric Dermatology, National Center for Rare Skin Disorders
Hôpital Pellegrin-Enfants and Hôpital Saint André, Centre Hospitalier Universitaire (CHU) de Bordeaux, Bordeaux, France


Global Vitiligo Support Community

 

Purpose:
The main goals of the Global Vitiligo Support Community are to:

  1. Serve as a forum for information-sharing and collaboration on mutually beneficial activities for local, regional, national and international vitiligo support organizations and to provide educational resources

  2. Serve as a conduit between the vitiligo patient and the other committees of the GVF

  3. Empower individuals with vitiligo by providing them with resources to manage the physical and psychosocial effects of vitiligo today

  4. As provide a vehicle through which vitiligo patients can help support the development of  treatments and, ultimately, a cure for vitiligo in the future


Chair:
Richard H. Huggins, M.D
Senior Staff Physician
Department of Dermatology
Henry Ford Hospital
Detroit, MI, USA

 

Imaging Committee


Purpose:
To advance research in vitiligo using various imaging modalities such as confocal microscopy, 3-D photography, and diffuse reflectance spectroscopy in order to:

  1. Assess disease activity

  2. Evaluate response to therapy

  3. Make advances in diagnostic and therapeutic applications of imaging in vitiligo


Chair:
Indermeet Kohli, Ph.D.
Cutaneous Research Physicist
Department of Dermatology
Henry Ford Health System
Detroit, MI

 

Reimbursement Committee

 

Purpose:

  1. To identify challenges and opportunities with reimbursement for the treatment of vitiligo.

 

Chair:
Vaneeta Sheth, M.D.
Private Practice
Boston, MA

 

Iltefat Hamzavi, MD

Senior Staff Physician

Department of Dermatology

Henry Ford Hospital

Hamzavi Dermatology

 

Global Social Narrative Creation Committee

 

Purpose:

To utilize different forms of media to create a global social narrative for vitiligo that:

 

  1. Increases vitiligo awareness

  2. Drives therapeutic innovation

  3. Encourages funding into research

 

Chair:

Michelle Rodrigues MBBS (Hons), FACD

Consultant Dermatologist

Department of Dermatology, St. Vincent's & The Royal Children's Hospitals

Melbourne, Australia

 

Social Media Dissemination Committee


Purpose:

  1. To carry out the missions of the global social narrative committee through dissemination of information on a local, regional, national, and global level.

  2. To utilize social media platforms to increase awareness for vitiligo and increase research funding for vitiligo.


Chair:

Nada Elbuluk, M.D., MSc

Assistant Professor

University of Southern California

Department of Dermatology 

Los Angeles, CA


Advocacy Committee


Purpose:
The goal of the GVF Advocacy Committee is to:

  1. Help educate, advocate and promote education and awareness of vitiligo to local, state and federal government entities, insurance companies, third party payers, and special interest groups

  2. Increase awareness of vitiligo as a disease, its treatment, and patient related issues to policymakers through efforts of advocacy and by combining the efforts of vitiligo clinicians, researchers, patients, support groups.

  3. Have a continual and ultimate goal of finding a cure for this devastating disease.


Chair:
Seemal R. Desai, MD, FAAD
Founder & Medical Director
Innovative Dermatology, PA
Clinical Assistant Professor
Department of Dermatology
Univ of Texas Southwestern Medical Center
Dallas, TX, USA

 

Basic/Translational Research Committee

 

The Basic/Translational Research (BTR) committee consists of a small number of basic/translational scientists who are largely focused on research in vitiligo.

 

Purpose:

  1. Act as a liaison between the GVF and individual researchers who study vitiligo in order to identify needs of scientists and determine how best to fulfill those needs through the resources of the GVF

  2. Organize meetings of these scientists, identify agenda topics for discussion, and communicate ideas back to the larger VWG

  3. Interface with other subcommittees to help them on their items when needed. For example, the advocacy subcommittee needed biomarker data on patients following treatment to help their work to get insurance plans to cover phototherapy for vitiligo. This is an ongoing project for us.

 

Chair:

John E. Harris, MD, PhD

Assistant Professor of Medicine, Division of Dermatology

Director, Vitiligo Clinic and Research Center

UMass Medical School

 

Website Committee

Purpose:

  1. To develop and maintain a web and social media presence for the  work generated by the GVF committees


Chair:

Babar K. Rao, MD
Clinical Professor
Department of Dermatology
Robert Wood Johnson Medical School
Location

Iltefat Hamzavi, MD
Senior Staff Physician
Department of Dermatology
Henry Ford Hospital
Hamzavi Dermatology

Website Content Director:

Tasneem F. Mohammad, MD
Clarence S. Livingood Research Fellow
Department of Dermatology
Henry Ford Hospital Systems

 

Planning Committee

 

Purpose:

  1. Periodically monitor progress of other committees

  2. Plan and execute GVF events, including annual meeting and abstract session

  3. Review and score abstracts for GVF abstract session

 

Chair:

Iltefat Hamzavi, MD

Senior Staff Physician

Department of Dermatology

Henry Ford Hospital

Hamzavi Dermatology

 

Governance and Finance Committee

 

Purpose:

  1. Provide oversight over the group as a whole and ensure that finances are in line with the GVF’s vision

 

Chair:

Henry W. Lim, MD

Chairman and C.S. Livingood Chair

Department of Dermatology

Henry Ford Hospital

Surgery Committee

Purpose:

  1. To review and promote best practices in the surgical treatment of vitiligo. 

  2.  Identify and share updated research and techniques with the vitiligo community. 

Board of Directors

 

The GVF is overseen by a Board of Directors comprised of medical practitioners from a diverse set of institutions as well as non-profit leaders.

 

Members:

 

Henry W. Lim, M.D.

Henry Ford Hospital

 

Iltefat H. Hamzavi, M.D.

Henry Ford Hospital

Hamzavi Dermatology

 

Pearl Grimes, M.D.

The Vitiligo & Pigmentation Institute of Southern California

 

Amit G. Pandya, M.D.

University of Texas Southwestern Medical Center

 

John H. Harris, M.D., Ph.D.

University of Massachusetts Medical School

 

Vicki Tiahrt 

Tiahrt Enterprises, LLC

Kim Boyd

Comerica Bank

Richard H. Huggins, MD
Henry Ford Hospital